Resources

Learn about support groups and professional organizations that may be helpful to you and your family.

National Fragile X Foundation | www.fragilex.org
1615 Bonanza St., Suite 202
Walnut Creek, CA 94596
Phone: 800-688-8765
E-mail: natlfx@FragileX.org
Fragile X Clinical and Research Consortium  | www.fxcrc.org
FRAXA Research Foundation | www.fraxa.org
10 Prince Place
Newburyport, MA 01950
Phone: 978-462-1866
E-mail: info@fraxa.org
Genetic and Rare Diseases Information Center  | www.rarediseases.info.nih.gov/gard
P.O. Box 8126
Gaithersburg, MD 20898-8126
Phone: 888-205-2311
E-mail: rarediseases@info.nih.gov
National Society of Genetic Counselors | www.nsgc.org
330 N. Wabash Avenue, Suite 2000
Chicago, IL 60611
Phone: 312-321-6834
E-mail: nsgc@nsgc.org
The Fragile X Society  | www.fragilex.org.uk
(United Kingdom)
Rood End House, 6 Stortford Road
Great Dunmow, Essex CM6 1DA
Phone: 00 44 (0)1371 875100
E-mail: info@fragilex.org.uk